Privacy Policy
The Polycystic Ovary Syndrome Association of Australia (POSAA) is a non-profit organisation offering information, education and support services to the community. It has many sectors and activities. Through these varied operations, POSAA gathers information from subscribers and other people to enable delivery of our services and to improve the nature of the services provided.
POSAA understands individuals' concerns regarding confidentiality and takes seriously its obligations in respect of all information it gathers. POSAA is committed to being consistent to both its mission and the laws of Australia. POSAA will comply with the National Privacy Principles as detailed below and as amended from time to time
How & why we collect information?
a) Nature of information:
The information we collect in most cases relates to our customers and subscribers but can relate to suppliers and other parties with which we deal.
Personal Information is gathered for a range of purposes, including: the provision of information; provision of support, group & association services; the compiling of subscriber and membership lists; and fundraising within the association.
In this policy 'personal information' means any information or opinion about an individual from which her/his identity is apparent or can reasonably be ascertained.
b) Collection of information:
In accordance with the NPPs, where practical, you may deal with us on an anonymous basis. However, as a provider of a wide range of services, we frequently find that it is necessary to collect personal information during the course of providing our services.
Personal information is collected directly from you when you provide this information by phone or in documents such as applications forms.
When personal information is collected from you, you will be advised at the time of collection or as soon as practical after its collection as to: the purpose of collection and the fact that you can gain access to the Personal Information.
c) Sensitive information:
As a provider of information and support services we may need to collect personal health information or other sensitive information about you in order to provide our services to you. We will only ask you for information where we believe it is necessary for us to know that information in the course of providing our services.
What information do we collect?
The types of information collected might include names, date of birth, e-mail address, postal address, telephone number, fax number. In addition, it may include health details, such as your specific symptoms, in as far as to the extent that you disclose them to us in order for us to tailor our subsequent communications to you and continuously improve our products and services (including registration to events)
If you make a payment through our website, your credit/debit card details are provided to Paypal our payment service provider. POSAA does not, and will not store your financial information.
How do we use this information?
We will use your personal information to provide you with the services, products or information you have requested, for administration purposes and to further our charitable aims, including for fundraising activities. If you do not wish to receive any further information from POSAA please tick the box indicated on relevant forms, by logging into My Profile to update your details or let us know when you contact us.
From time to time, we may also use your information to contact you for fundraising, market research, or to provide you with marketing information we think would be of particular interest. At a minimum, we will always give you the opportunity to opt out of receiving such direct marketing or market research contact.
We promise we will not pass your details to other organisations without your prior and written consent, unless required to do so by law.
How do we protect personal information?
We use a secure server when you make a payment via our website. We also take appropriate measures to ensure that the information disclosed to us is kept secure, accurate and up to date and kept only for so long as is necessary for the purposes for which it is used.
If you use email to communicate with POSAA, including email links and email forms on this website, this will not be secure and you should be aware that we cannot guarantee that it remains confidential whilst in transit. We will only retain details provided in your email(s) for the purposes of dealing with your enquiry, unless we have clearly indicated the purposes of collecting personal data.
Your consent
By providing us with your personal data, you consent to the collection and use of any information you provide in accordance with the above purposes and this privacy statement.
You also consent to our transferring your information to countries or jurisdictions which do not provide the same level of data protection as Australia, if necessary for the above purposes. If we do make such a transfer, we will, if appropriate, put a contract in place to ensure your information is protected.
Right of access
You have the right to ask for a copy of the information we hold about you and to have any inaccuracies in your information corrected.
Changes
If your personal details change, please help us to keep your information up to date by notifying us at the above address or by updating your details through the My Profile section of the POSAA website.
We reserve the right to amend this privacy statement. If we do so, we will post notice of the change on our website and you will be deemed to have accepted such changes.
This statement does not cover external websites that we link to from this site, we refer you third party websites that provide relevant and useful information for people living with polycystic ovary syndrome (PCOS) and related conditions.
Do we use 'Cookies' ?
'Cookies' are small pieces of information sent by a web server to a web browser, which enables the server to collect information from the browser. Essentially it takes the form of a small text file deposited on your computer's hard drive.
POSAA uses cookies to ensure that you can interact with our web sites successfully, to identify you when you visit our website and to keep track of your browsing patterns. The use of cookies does not give us access to the rest of your computer and it does not collect personal details from your Internet Service Provider with the exception of recording your IP (internet protocol) address.
If you want to prevent our cookies being stored on your computer in future, you may do so by referring to your internet browser's instructions. You can do this by clicking on the "Help" menu. Please note however that if you disable our cookies you may not be able to access certain services or facilities on our sites and your use of our site may be restricted.
Quality and Security of Personal Information
We will take reasonable steps to ensure that personal information is accurate and provide opportunities for individuals to update their personal information.
Personal Information is stored in both hard copy and on computer. Reasonable steps will be taken to ensure that hard copies of personal information and personal information stored on computers are secure.
We regularly delete, destroy or de-identify personal information if the information is no longer needed by us.
If you have any questions regarding any points of this privacy policy, you should email This e-mail address is being protected from spambots. You need JavaScript enabled to view it